Wednesday, April 14, 2010

So sorry

I am very sorry for those of you who have been waiting to hear. I am a tax preparer and as you know April 15 is the deadline so I have been swamped.

Anytahoo, how is it going, well the Ampyra has been going good. . . not great (as I, of course expected) I have a little more energy, my leg no longer drags, I don't really know if I am moving faster but I am able to go further distances. I tested it by taking my dog for a walk (a shih tzu, he can't pull too hard). The stiffness is what is kickin my butt. I tried the 5-loxin for the inflammation, don't do it. It caused my stomach to go wacky and it was not a fun experience. I stopped taking it and I'm all better so I have to find something else natural to help with the spasticity. If you have an idea let me know.

It has been 2 weeks since I started and I am improving. My expectations on the rate of improvement were much higher, but I am happy with what improvement I do have. I will soon be done with the tax season and will hopefully fill that time with a business venture I am working on but I promise not to allow so much time between posts.

Have a blessed life, I know I am!!

Monday, April 5, 2010

Feelin' pretty darn good!!

I have been on the Ampyra for 4 full days and I feel like my walking is beginning not to look so drunk. I know that the core helps with the balance but just walking from the porch to the van seems slightly easier. If you could have seen me walk at home where I just let it loose you'd know what I mean by drunk, in public I fight it so it doesn't look so drunk but in any case it has become easier. It's like when you try on that summer outfit after the winter has come to a close. . . OMG it doesn't fit. You didn't notice the weight gain but it's inherently obvious when trying on clothes YOU KNOW should fit (I know cause it's a problem I'm also dealing with). But I am noticing since I'm looking for it. Anyway, it is actually working. I have however always had back pain I do think it is slightly different though. That is a side effect, but it is one I can deal with.

I go back for a 3 week eval with my neuro on the 21st and we will see what he has to say. I must say though I have the best neuro in the world and he will not push for me to do something that I am not comfortable with or that isn't working just because it is supposed to. He generally gives me what I ask for and encourages me to do the healthy all natural first. Dr. Berger you're awesome, thanks for being mine!

I am going to have to figure out this video thing on here and post a video b4 and after.

I can't wait to start reading some of what others are saying about Ampyra, Good bad or indifferent I wanna know other experiences.

Thursday, April 1, 2010

It's here!!!!!!!!!

Ok so I finally got the script!!!! I'm gonna do the 8 and 8 time frame so I just took the first dose. I am sooooo super excited to finally be on it. I will keep everyone updated daily on how things are going and how I am feeling . . . The only side effect I am looking forward to is the insomnia. . . maybe I won't feel so ready for a nap 24-7. . .lol

I feel like a kid in a candy store. . . Until tomorrow. . . .WOOOOOOOHOOOOOOOOOOO